Monday, March 9, 2020
I have been exceptionally cold and sweaty since I showered last night. I cannot pinpoint any reason for it. I was fine all day yesterday and, until I took my shower, I was not sweaty or very cold. I was awake most of the night because I was shivering hard enough to keep me awake. I finally fell asleep for two hours about two and one-half hours before it was time to get up. I ran my bed heaters on high most of the night.
When I woke up, I was only chilly, not teeth-chattering cold. The giant sweat spot surrounding my body that had been plaguing me all night was contained to under my body and my sheet was dry where my arms lay. I had been rolling over frequently during the night to try to have my heaters dry the sheet, but every time I rolled right back into a cold, wet spot.
I sleep with a wedge pillow propping my stumps in the air, so I do not get pressure sores on the bottom of my stumps from the bed. Thanks to all my rolling, the wedge pillow ended up beside my legs instead of under them. At one point overnight, my big dog jumped on my bed to lay where my feet would be if I had any. As my dog walked around in a circle to find a comfortable position, he kicked my pillow off the bed.
When my older daughter, Megan, arrived to get me out of bed for the day, she looked at the pillow on the floor and then looked at me questionably. I told Megan I had a rough night; I had not been getting busy (if I had been getting busy, I would not have left any evidence for my daughter to find). Megan told me I was cold and sweaty because I wanted a shower; she said I would have been fine if I stayed dirty and stinky.
I would like to say the sweat and cold have subsided as the day has progressed, but I would be lying. I have both computer heaters plugged in and on high. I have the floor heater running and turned up the house heat. I would go back to bed, but it was not any better when I was still in bed this morning. I am pretty much useless today. I did manage to edit, upload, and schedule the Wednesday video for my seven-year-old’s, Mika, YouTube channel.
I have a Monday, Wednesday, Friday schedule for posting Mika’s videos. On Mondays, I edit, upload, and schedule the Wednesday video. On Wednesdays, I edit, upload, and schedule the Friday video. On Fridays, I edit, upload, and schedule the Monday video. That schedule has been working pretty well for me since I started it at the beginning of the year.
The recording schedule for Mika’s videos is a little less structured. We recorded half of Mika’s reading videos during the summer break and the rest on Mondays until early November. We record Mika’s adventure videos whenever we go fun places. We recorded Mika’s Christmas videos on Christmas day, and we record her jokes on Mondays, now that we are not recording reading videos. Basically, we record when we feel like it. We did not record videos today. I have been shaking so hard, I do not think I can keep the camera even remotely still. I am shaky enough with the video camera on a good day.
I have given up on making this day even remotely productive. My helper is doing tasks that do not require any participation from me, and I appreciate it. At this point, all I can do is hope that tomorrow is better and scratch today off as a bad day. I do not mind one bad day; twenty bad days in a row would be a problem.
My piece of advice to you is to have a bad day. Everybody has good and bad days even if you do not have cancer. I feel so miserable today, I probably will not have a worse day for the rest of the year. I am okay with hitting bottom in March; now I have nine more months to be amazing.
Until next time,
Susanne
Please check out my GoFundMe page.
I have been exceptionally cold and sweaty since I showered last night. I cannot pinpoint any reason for it. I was fine all day yesterday and, until I took my shower, I was not sweaty or very cold. I was awake most of the night because I was shivering hard enough to keep me awake. I finally fell asleep for two hours about two and one-half hours before it was time to get up. I ran my bed heaters on high most of the night.
When I woke up, I was only chilly, not teeth-chattering cold. The giant sweat spot surrounding my body that had been plaguing me all night was contained to under my body and my sheet was dry where my arms lay. I had been rolling over frequently during the night to try to have my heaters dry the sheet, but every time I rolled right back into a cold, wet spot.
I sleep with a wedge pillow propping my stumps in the air, so I do not get pressure sores on the bottom of my stumps from the bed. Thanks to all my rolling, the wedge pillow ended up beside my legs instead of under them. At one point overnight, my big dog jumped on my bed to lay where my feet would be if I had any. As my dog walked around in a circle to find a comfortable position, he kicked my pillow off the bed.
When my older daughter, Megan, arrived to get me out of bed for the day, she looked at the pillow on the floor and then looked at me questionably. I told Megan I had a rough night; I had not been getting busy (if I had been getting busy, I would not have left any evidence for my daughter to find). Megan told me I was cold and sweaty because I wanted a shower; she said I would have been fine if I stayed dirty and stinky.
I would like to say the sweat and cold have subsided as the day has progressed, but I would be lying. I have both computer heaters plugged in and on high. I have the floor heater running and turned up the house heat. I would go back to bed, but it was not any better when I was still in bed this morning. I am pretty much useless today. I did manage to edit, upload, and schedule the Wednesday video for my seven-year-old’s, Mika, YouTube channel.
I have a Monday, Wednesday, Friday schedule for posting Mika’s videos. On Mondays, I edit, upload, and schedule the Wednesday video. On Wednesdays, I edit, upload, and schedule the Friday video. On Fridays, I edit, upload, and schedule the Monday video. That schedule has been working pretty well for me since I started it at the beginning of the year.
The recording schedule for Mika’s videos is a little less structured. We recorded half of Mika’s reading videos during the summer break and the rest on Mondays until early November. We record Mika’s adventure videos whenever we go fun places. We recorded Mika’s Christmas videos on Christmas day, and we record her jokes on Mondays, now that we are not recording reading videos. Basically, we record when we feel like it. We did not record videos today. I have been shaking so hard, I do not think I can keep the camera even remotely still. I am shaky enough with the video camera on a good day.
I have given up on making this day even remotely productive. My helper is doing tasks that do not require any participation from me, and I appreciate it. At this point, all I can do is hope that tomorrow is better and scratch today off as a bad day. I do not mind one bad day; twenty bad days in a row would be a problem.
My piece of advice to you is to have a bad day. Everybody has good and bad days even if you do not have cancer. I feel so miserable today, I probably will not have a worse day for the rest of the year. I am okay with hitting bottom in March; now I have nine more months to be amazing.
Until next time,
Susanne
Please check out my GoFundMe page.