Thursday, October 31, 2019
We enjoyed two school snow days this week. My seven-year-old, Mika, did her happy dance both times I told her school was closed on Monday and Wednesday. My significant other, Donald, actually needed to shovel snow at our house. If we could figure out a way to attach a plow to my wheelchair, I could clear the snow.
Donald worked for two hours before they sent him home Monday and had Tuesday and Wednesday off due to weather. Donald builds commercial HVAC systems and the building they are working on is not heated yet. They are currently hanging the duct work on this job and it has been too cold for the sealants to set properly.
Donald called his boss yesterday and got the rest of the week off because his mother’s legs have been going numb and she fell and ended up in the hospital. They found a benign tumor on her spine that was causing the numbness and yesterday she had spinal surgery. The prognosis is good, she could feel more parts of her body after surgery than before and Donald is at the hospital again to keep her company.
I am going to have to complain about our health system today (Angry Susanne is taking over). Donald’s mom has been having numbness in her legs for a few years now. She sold and moved out of her home and into an assisted living facility last month because she could not walk up and down her stairs anymore. Even walking on a flat surface was getting difficult. Why did it require a fall for a scan of her spine to be ordered?
I am sure her situation was just like my cancer. Her tumor was found by accident when they were looking for internal damage from her fall. She could end up able to walk and traverse stairs perfectly for several more years. She may have sold her house because of medical incompetence or insurance red tape.
I am absolutely certain my cancer started manifesting itself in September 2015 and I was hospitalized several times in the three years until they found my cancer in August 2018. Every time I went in the hospital I asked for an MRI. Every time I was told they could only do a CT scan because insurance would not pay for an MRI because it would be a diagnostic procedure, not an emergency treatment procedure.
Seriously? I cannot have a diagnostic procedure done during a hospital stay? I am at the hospital to have them fix what is wrong with me. How can they fix me if they cannot determine what is wrong with me? I have a death sentence now. If an MRI had been done the first time I asked in December 2015, my cancer may have been caught in time for me to live to be 100 and torture my children.
When I met Dr. Doom and Gloom for the first time and told him I hated food, he told me that was a common sign of ovarian cancer. I had been telling doctors for three years I hated food, and nobody would (or could due to insurance stupidity) act upon that knowledge. And now, here I am thinking about my mother-in-law and wondering how many millions of other people this happens to.
My piece of advice to you is do a better job of fighting for your medical rights than I did. My cancer was found when an MRI was finally ordered (at the end of August 2018) to look for bone infection because I had two pressure wounds so deep the doctors had to do a surgical debridement at the hospital and now my MRI was an emergency treatment procedure.
You know when something is not right with your body. Do what you need to do. Your insurance company is not your friend. They simply want you to die so they do not need to pay any more claims.
Until next time,
Susanne
Please check out my GoFundMe page.
We enjoyed two school snow days this week. My seven-year-old, Mika, did her happy dance both times I told her school was closed on Monday and Wednesday. My significant other, Donald, actually needed to shovel snow at our house. If we could figure out a way to attach a plow to my wheelchair, I could clear the snow.
Donald worked for two hours before they sent him home Monday and had Tuesday and Wednesday off due to weather. Donald builds commercial HVAC systems and the building they are working on is not heated yet. They are currently hanging the duct work on this job and it has been too cold for the sealants to set properly.
Donald called his boss yesterday and got the rest of the week off because his mother’s legs have been going numb and she fell and ended up in the hospital. They found a benign tumor on her spine that was causing the numbness and yesterday she had spinal surgery. The prognosis is good, she could feel more parts of her body after surgery than before and Donald is at the hospital again to keep her company.
I am going to have to complain about our health system today (Angry Susanne is taking over). Donald’s mom has been having numbness in her legs for a few years now. She sold and moved out of her home and into an assisted living facility last month because she could not walk up and down her stairs anymore. Even walking on a flat surface was getting difficult. Why did it require a fall for a scan of her spine to be ordered?
I am sure her situation was just like my cancer. Her tumor was found by accident when they were looking for internal damage from her fall. She could end up able to walk and traverse stairs perfectly for several more years. She may have sold her house because of medical incompetence or insurance red tape.
I am absolutely certain my cancer started manifesting itself in September 2015 and I was hospitalized several times in the three years until they found my cancer in August 2018. Every time I went in the hospital I asked for an MRI. Every time I was told they could only do a CT scan because insurance would not pay for an MRI because it would be a diagnostic procedure, not an emergency treatment procedure.
Seriously? I cannot have a diagnostic procedure done during a hospital stay? I am at the hospital to have them fix what is wrong with me. How can they fix me if they cannot determine what is wrong with me? I have a death sentence now. If an MRI had been done the first time I asked in December 2015, my cancer may have been caught in time for me to live to be 100 and torture my children.
When I met Dr. Doom and Gloom for the first time and told him I hated food, he told me that was a common sign of ovarian cancer. I had been telling doctors for three years I hated food, and nobody would (or could due to insurance stupidity) act upon that knowledge. And now, here I am thinking about my mother-in-law and wondering how many millions of other people this happens to.
My piece of advice to you is do a better job of fighting for your medical rights than I did. My cancer was found when an MRI was finally ordered (at the end of August 2018) to look for bone infection because I had two pressure wounds so deep the doctors had to do a surgical debridement at the hospital and now my MRI was an emergency treatment procedure.
You know when something is not right with your body. Do what you need to do. Your insurance company is not your friend. They simply want you to die so they do not need to pay any more claims.
Until next time,
Susanne
Please check out my GoFundMe page.